Notice, Zach is so into the "Game" that the kitty brushing up against him (pet me, pet me) doesn't even bother him!
And here was what the girls played with all day - we had to keep making them "cool forts and tents".
This street takes a turn to the right, and then another turn up the church driveway/parking lot, and another turn up the church walkway, and then they wound you around inside (like an amusement park) I think because of the rain.
We couldn’t break down with the boys there...so we danced. And continue to THANK GOD for every single moment we have together. We truly ARE so blessed. It was a tough day to sit through and we didn’t get back to the RMD house until 6:00 last night.
We also met with two neurologists yesterday who ordered an E.E.G. for Monday. This will measure the waves of the brain and possibly tell us about the shakiness we’re seeing, and the slurred speech he’s had a couple of times. They don’t want to put him on any anti-seizure meds until they see the E.E.G. The symptoms could be seizure related, or disease related, but this test should tell us more.
So Monday will be a full day- we’re going to have a friend watch the boys in the toy room at the hospital while we visit with the doctor and go over our options. I have a list of questions all ready…so we should have more to report after that. We were not able to look at scans, since they were still writing up the reports, and with the boys there, I didn’t want to push it. I will be getting a copy of them on Monday.
We just got back from going out for lunch and got SOAKING wet! All of us except Coleman who was in his stroller with the rain guard covering him. We only walked about 5 blocks, but it looks like we just stepped out of the shower with our clothes on! Caden LOVED the rain and was holding his mouth open the entire way. He can’t wait to catch snowflakes on his tongue when we get back to Iowa! :)
After Monday we should have a better idea of when that will be, I think they want us to stay out here to be on the study. I’m going to try to negotiate it so we can go home and maybe find a dr in Des Moines who would be willing to work with Sloan? (something we're praying for) Coleman keeps asking when we get to go home...
For right now, things are up in the air…but our feet are firmly planted in our faith. We’re still praying our hearts out, and trusting that God hears, and is carrying us every step, as He always has.
Thank you for the messages of support, for your prayers, and kindness. It truly means so much to us. Please know how VERY much we appreciate our carepage family!
Blessings to you all,
A dancing Team Larson
p.s. a BIG thanks to Aaron Horn, Eli's dad (cp: EliRHorn) who offered to take Caden to the bubble show we were signed up for last night. He thought that way Caden wouldn't have to sit through the platelet transfusion. I asked Caden if he wanted to go, his eyes sparkled and he said YES! Then he looked over at Coleman and said, "no... I fink I will stay here and pway my v-smile." What a brother.
Thanks for the offer though Aaron. Hope you and Eli had safe travels back to Iowa this morning! Say hi to the snowflakes for us.
If you want to send Coleman or his family a card, or small gift ...Here's his address in NY City at the Ronald McDonald House. On your return address label (since they don't forward mail) put the families address in Iowa, and when the package gets rejected in NY, it will be automatically returned to "sender" which will be: Team Larson Box 251 Callender, Iowa 50523 (Tricky!) Please, cards, pictures of other kids and families, pets----anything cheer him up.
You can also make a monetary donation through http://www.dmarkette.com/donate-to-colemans-prayer/ .... Darryl has written a song for Coleman (beautiful) and there is a spot to make a donation to the family. All proceeds (100%) go to Peggy and Scott Larson.
This sweet Coleman needs more prayers than ever now. If you have a blog or a website or a way to get the word out.....please ...pass this link along so the message gets out. I don't know this little boy personally, yet, I feel like it could be my kid at any minute that something like this happens to - and that scares the crap out of me. This is the strongest family I've ever come across and I hope that someday I get to meet them.
Here's the rest of the pictures ....just click play - or you can scroll through them.
Good luck, for whoever you're voting for ... and may the best man win! :) Just make sure to get out there and vote. This election is critical and every voice counts!